My Life With Dystonia
It was about Ten years ago, My sister was going through a Hard time with this disease. I did not understand it. For some reason we don't take up a cause until we are affected by it. She had undergone DBS surgery you can read more about that from the Link.
She began to have Dystonic Storms, Link to what one Looks like to come later, I would take care of her it was a tough Job, but even tougher for her. I never dreamed I would later have the same disease.
There will be more to come financial struggles, and yes there will be some triumph. I Just want to take you on this journey with me. this is a Terrible Disease it affects the whole family. Please this may be boring at first, but will you follow the Journey
You were a faithful visitor...and your visits meant the world to me! There are no words for the devastation I felt when you got them. We joked about it, but I felt like they must be contagious or something. I truly believe it is tougher on the care giver than the one for whom you are caring. Love you...and even in dystonia there are plenty of blessings and triumphs. God gives us what we need and more. I miss you so much...and love you with my whole heart. I don’t remember life without you, and I’m incredibly thankful we were close and spent so much time together while we had the chance! 💗💗
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