Dealing with Quite a bit at the moment still on Disability, which doesn't cover bills. I back date bills instead of ballots so we can kind of get groceries. my whole family has covid, and I am the only on that is Asymptomatic. My wife has been running a fever on and off for about 2 weeks, my Daughter who they think has Addison Disease has had it about the same length of time. Losing sense of taste and smell. Reminds me of the flu, but my wife has had the flue worse. Being Quarantined doesn't really change my life much because I do not go many places these days. My Dystonic has gotten better not as much Twisting on the outside, but still have the twisting and turning on the inside, and the mental side of it as I have expressed before is probably worse. So Much Stress at the moment doesn't help, but we will get through it, Talked to my therapist and psychiatrist and that helps along the way. any encouragement from people helps. I am thankful for my , brother Isaac and his wife Christine They have been a constant source of encouragement to us and of course my mom and dad, there have been some Disappointments, but those you just have to live with. Just wanted to give kind of an up date on where this Journey is. Where it is going I do not know, but we have no choice but to follow it. Thinking about going Live for Living with Dystonia what do you all think? Give me some feedback in the comments, and please keep my family in your prayers. #RamblingsofsnIdiot #Mythoughts #MyStoryDealing with Quite a bit at the moment still on Disability, which doesn't cover bills. I back date bills instead of ballots so we can kind of get groceries. my whole family has covid, and I am the only on that is Asymptomatic. My wife has been running a fever on and off for about 2 weeks, my Daughter who they think has Addison Disease has had it about the same length of time. Losing sense of taste and smell. Reminds me of the flu, but my wife has had the flue worse. Being Quarantined doesn't really change my life much because I do not go many places these days. My Dystonic has gotten better not as much Twisting on the outside, but still have the twisting and turning on the inside, and the mental side of it as I have expressed before is probably worse. So Much Stress at the moment doesn't help, but we will get through it, Talked to my therapist and psychiatrist and that helps along the way. any encouragement from people helps. I am thankful for my , brother Isaac and his wife Christine They have been a constant source of encouragement to us and of course my mom and dad, there have been some Disappointments, but those you just have to live with. Just wanted to give kind of an up date on where this Journey is. Where it is going I do not know, but we have no choice but to follow it. Thinking about going Live for Living with Dystonia what do you all think? Give me some feedback in the comments, and please keep my family in your prayers. #RamblingsofsnIdiot #Mythoughts #MyStory
Dystonia is a neurological movement disorder that causes involuntary muscle contractions, leading to abnormal postures and movements. Dystonic storms, also known as dystonic crises, are a rare, except in my family it is quite common, but severe form of dystonia that involve prolonged and intense muscle spasms throughout the body. These spasms can be extremely painful and cause significant physical and emotional distress. Waking up in the middle of the night to a dystonic storm can be an incredibly traumatizing experience. Believe me!! I will never forget the first one for me. One moment I was lying on the bed just fine, and the next I was twisting and contorting in ways I cannot explain. The sudden onset of intense muscle contractions can be extremely frightening, leaving individuals feeling helpless and out of control. The pain associated with the spasms can be excruciating, and there is no way to find relief or comfort. In addition to the physical symptoms, dystonic storms can al
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