When Your Own Body Becomes a Stranger Dystonia Awareness Month — The Storms We Hide, the Families Who Stand in the Rain There is a kind of fear that comes with dystonia that is difficult to explain. Sometimes it isn't the fear of having the disease. It is the fear of admitting that you might. Because once you say the word dystonia , the possibility becomes real. And sometimes people would rather live in the uncertainty of “Maybe it's nothing” than face the terrifying question of “What if it is?” I understand that fear. I have lived through dystonic storms. And I have watched my sister fight them— every single day. So when I talk about dystonia, I am not talking about something I learned from a pamphlet. I am talking about something that has lived inside my family. The Storm Nobody Wants to Name Sometimes it begins with something small. A muscle pulling when it shouldn't. A movement that doesn't feel voluntary. A strange posture. A cramp that keeps r...
an aspiring Poet, Thoughts from the Heart, Write on a number of Topics just found that I can write